Welcome
This site is intended to provide up-to-date, relevant information on the condition Chronic Fatigue Syndrome/Myalgic Encephalopathy and help raise awareness of this debilitating illness. Please help me to do this by sending the link to anyone who is or might be suffering with ME/CFS.
Please note that I am not a medical doctor but a sufferer of ME/CFS; you are advised to contact your own practitioner if you are at all concerned with your health. The information I provide is gathered from my own experience and research and I ask the reader to look into things themselves before embarking on any new regimes. Please be aware that I cannot accept any responsibility for damage arising as a result of readers accessing this website and using the information I provide. Thank you.
If you wish to contact me personally my email address is: wordsworth99@hotmail.com.
WHAT EXACTLY IS CFS?
Chronic Fatigue Syndrome, also known as Myalgic Encephalopathy, Post Viral Fatigue Syndrome, Chronic Fatigue and Immune Dysfunction Syndrome, is a poorly understood condition that is characterised by profound fatigue and exhaustion - with loss of muscle power, pain and tenderness following normal physical or mental activity - and a range of neurological, endocrine and cognitive disturbances. CFS is classified as a neurological disorder by the World Health Organisation (International Classification of Disease 10: G93.3).
Affecting all social classes and ethnic backgrounds, it is estimated that between 0.2% and 0.4% of the population have the illness. It can occur at any age with the greatest incidence being between the early twenties and mid forties. Women are most commonly affected.
Often sufferers are unable to work, with 25% acutely disabled. It impacts severely on the lives of sufferers and carers. Very little support is available and isolation and loss of hope often follow years of suffering.
It most commonly occurs in a sporadic form but there have been epidemic cases, such as the outbreak in the Royal Free Hospital, London, 1955.
Very little is known or understood about the illness and its causes and as yet no universal cure or treatment has been found.
It has been an age since I have posted anything of importance here. Apologies all round. I sadly had another bad turn and everything had to be put on hold whilst I recovered. The loss of a dear family member also added to the strain. But I am back now and although not full of beans I am at a level where I can start my writing again. So stay tuned, I have a wealth of information at my fingertips just waiting to be transfered to yours!
5 comments:
Sorry about your loss and your poor health. Looking forward to your posting though...one step at a time.
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I am sorry you are suffering so. I have Lupus/CFS/fibromyagia and cardiac problems and I know how distressing trying to live with this is. I will check in on you again to see how you are doing!
Blessings and God's comfort,
Glenys
Thank you so much Connie and Glenys for your kind words. I am sorry it has taken me an age to reply to your comments, but I am sure you understand - sadly, sickness calls.
Hope you are both feeling well today.
Andie xx
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